Technology helps those living with Epilepsy
E-Action is a multifaceted resource aimed at Canadians with epilepsy, as well as their family, friends and caregivers. E-Action is a online community that strives to provide a caring and informative environment for those wishing to learn more about epilepsy. Not only will you find information about different types of epilepsy, treatment options and lifestyle tips now have an exciting new information source and support network. E-Action™ – Taking Action Against Epilepsy strives to provide a caring and informative environment for those touched by the disorder.
At the heart of E-Action is a comprehensive web site that enables you to locate education and support resources coast-to-coast, and provides up-to-date news.There handy tips for sufferers and caregivers as well as pages and pages that can provide answers to any questions you may have about this debilitating disease that affects 1% of Canadians.
The web site also features E-Action Leaders, those who have not let epilepsy stop them from achieving what they want in life. Here is a sample:
Mobile users can download the E-Action app for iPhone, iPad and iPod Touch. It is designed to teach you more about epilepsy in a fun and informative way. Some of the features of the app include:
• Epilepsy education and management information for both patients and caregivers
• The “brain game” where you match structures of the brain with their appropriate name. See how your brain stacks up!
• Lifestyle tips
• Links to Canadian epilepsy associations
The App also links to My Epilepsy Diary Canada, which enables users to track their seizures, medicines, progress and overall well-being on their smartphone, tablet or computer. Users can then share this timely and relevant real word information with their doctors so they can optimize their epilepsy care. Users can also track and manage their therapies with reminders to be sent by text, email or local smart phone notification.
My Epilepsy Diary is available on all popular models of smartphones and tablets, and data is stored securely online. Patients know their records will be kept even if they switch phones or replace a lost phone, while their authorized physicians can access patient-reported outcomes immediately.
E-Action™ provides educational resources that may help those living with epilepsy to take more control of their seizures and their effect on their lives. It reminds everyone that people living with epilepsy need understanding and acceptance, and deserve comprehensive care and support. One third of those living with epilepsy do not have control of their seizures, which severely affects their independence, productivity and overall quality of life. Spreading the word about epilepsy will help dispel myths, reduce stigma and remind people affected by seizure disorders that they are not alone.
E-Action is an initiative of UCB Canada Inc., a global biopharmaceutical company focused on the discovery and development of innovative medicines and solutions to transform the lives of people living with severe diseases of the central nervous system.